I had my first treatment with Tysabri, the newest drug on the market used to battle MS. It’s a once-a-month infusion (IV hook-up), administered in the doctor’s office. When my doctor talked to me about this new drug, he said “it will stop MS in its tracks”. However, I was still hesitant and had been vacillating for the past year as to whether I should switch from my Avonex (weekly injections) to Tysabri. I felt like “if it ain’t broken, why mess with it”. But, recently I have noticed that my feet are numb more often and there is increased spascicity in the muscles in my thighs. spasticity Tysabri was first approved in 2004 but was temporarily taken off the market in 2005 over concerns about a serious brain infection, known as progressive multifocal leukoencephalopathy (PML). It seems that three patients developed the disorder, characterized by destruction of the myelin sheath that covers nerve cells. To put this in everyday language, the brain deteriorates. There is no cure for PML, no...
This picture pretty much says it all as far as the highlight of this past week. I LOVE these boys. We watch our grandsons Maddox (age 5) and Nolie (age 2) on Sundays. We've really cut back on how often we watch them. There was a time that Dan was living w/ us (in Sleepy Hollow) and we saw them every Tuesday and every other weekend. Then Dan moved back in w/ Tasha and we moved to Huntley and now we see them only on Sundays. I don't know what the future holds for D&T. Right now, things are terrible between them and I'm not sure how they move on to the next "stage" since neither of them can afford their own place. And, still the children pay the price. Don't they always? I know mine did. You know HOW I know? Because Rosie tells me all the time the pain that was inflicted on her when her Dad and I divorced. She's pretty vocal about telling me how the poor decisions I made caused her "trauma". I respect her version of events. How can I not? If ...
So, I'm "wistful" again.....what's new? Summer is nearing its end and I am preparing to send my daughter off to college. Although I'm not prepared to dive back in to posting again, I would like to share the continuation of my essay about my daughter and her best friend. Tomorrow, we are having a cook-out to wish good luck to both of them as they begin a new chapter of their lives. (Here's the first part of the essay......previously posted) http://www.blogit.com/Blogs/Blog.aspx/MS_Mom/508169 And, now........as they pack up and get ready to leave............ And now, another major challenge looms before them, as individuals and friends, as they each prepare to separate from one another in order to live their next great adventure. Once again, the strength of their friendship will be tested as they will be attending different colleges. Now, the monumental challenge becomes my own, as Rose’s Mother and Lindsey’s “other” Mother. The little girls that I watched grow ...
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