I had my first treatment with Tysabri, the newest drug on the market used to battle MS. It’s a once-a-month infusion (IV hook-up), administered in the doctor’s office. When my doctor talked to me about this new drug, he said “it will stop MS in its tracks”. However, I was still hesitant and had been vacillating for the past year as to whether I should switch from my Avonex (weekly injections) to Tysabri. I felt like “if it ain’t broken, why mess with it”. But, recently I have noticed that my feet are numb more often and there is increased spascicity in the muscles in my thighs. spasticity Tysabri was first approved in 2004 but was temporarily taken off the market in 2005 over concerns about a serious brain infection, known as progressive multifocal leukoencephalopathy (PML). It seems that three patients developed the disorder, characterized by destruction of the myelin sheath that covers nerve cells. To put this in everyday language, the brain deteriorates. There is no cure for PML, no...
This picture pretty much says it all as far as the highlight of this past week. I LOVE these boys. We watch our grandsons Maddox (age 5) and Nolie (age 2) on Sundays. We've really cut back on how often we watch them. There was a time that Dan was living w/ us (in Sleepy Hollow) and we saw them every Tuesday and every other weekend. Then Dan moved back in w/ Tasha and we moved to Huntley and now we see them only on Sundays. I don't know what the future holds for D&T. Right now, things are terrible between them and I'm not sure how they move on to the next "stage" since neither of them can afford their own place. And, still the children pay the price. Don't they always? I know mine did. You know HOW I know? Because Rosie tells me all the time the pain that was inflicted on her when her Dad and I divorced. She's pretty vocal about telling me how the poor decisions I made caused her "trauma". I respect her version of events. How can I not? If ...
Yesterday I sat on the back porch enjoying 70 degree weather. Warm and sunny. I was so happy that summer was right around the corner. The has been one of the longest winters that I can remember and I know why it feels that way. First, last year, we didn't open our pool (that's when we starting thinking SUMMER) until after Memorial Day. We had to replace all the pipes to the pool and close off the bottom drain. Cost us quite a bit of money, but it had to be done. So, we started the season LATE and ended it EARLY because we closed the pool on last day of August so we could take our vacation. We didn't want to have to worry about the functioning/cleaning etc of the pool so we just decided to close it. So basically, it was a VERY short pool season and that is how we measure our summers here; by just how many days we get to FLOAT in the pool. Secondly, time has really been dragging ever since that ass hat POTUS has been in Washington. Both Jeff and I wake every morning and...
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