Celebrating Richard Gladwell | WXXI

Celebrating Richard Gladwell WXXI

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I Don't "Do" Yellow.

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I had my first treatment with Tysabri, the newest drug on the market used to battle MS. It’s a once-a-month infusion (IV hook-up), administered in the doctor’s office. When my doctor talked to me about this new drug, he said “it will stop MS in its tracks”. However, I was still hesitant and had been vacillating for the past year as to whether I should switch from my Avonex (weekly injections) to Tysabri. I felt like “if it ain’t broken, why mess with it”. But, recently I have noticed that my feet are numb more often and there is increased spascicity in the muscles in my thighs. spasticity Tysabri was first approved in 2004 but was temporarily taken off the market in 2005 over concerns about a serious brain infection, known as progressive multifocal leukoencephalopathy (PML). It seems that three patients developed the disorder, characterized by destruction of the myelin sheath that covers nerve cells. To put this in everyday language, the brain deteriorates. There is no cure for PML, no...
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Summer's Nearly Over......

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So, I'm "wistful" again.....what's new? Summer is nearing its end and I am preparing to send my daughter off to college. Although I'm not prepared to dive back in to posting again, I would like to share the continuation of my essay about my daughter and her best friend. Tomorrow, we are having a cook-out to wish good luck to both of them as they begin a new chapter of their lives. (Here's the first part of the essay......previously posted) http://www.blogit.com/Blogs/Blog.aspx/MS_Mom/508169 And, now........as they pack up and get ready to leave............ And now, another major challenge looms before them, as individuals and friends, as they each prepare to separate from one another in order to live their next great adventure. Once again, the strength of their friendship will be tested as they will be attending different colleges. Now, the monumental challenge becomes my own, as Rose’s Mother and Lindsey’s “other” Mother. The little girls that I watched grow ...
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When will this end?

Yesterday I sat on the back porch enjoying 70 degree weather. Warm and sunny. I was so happy that summer was right around the corner. The has been one of the longest winters that I can remember and I know why it feels that way. First, last year, we didn't open our pool (that's when we starting thinking SUMMER) until after Memorial Day. We had to replace all the pipes to the pool and close off the bottom drain. Cost us quite a bit of money, but it had to be done. So, we started the season LATE and ended it EARLY because we closed the pool on last day of August so we could take our vacation. We didn't want to have to worry about the functioning/cleaning etc of the pool so we just decided to close it. So basically, it was a VERY short pool season and that is how we measure our summers here; by just how many days we get to FLOAT in the pool. Secondly, time has really been dragging ever since that ass hat POTUS has been in Washington. Both Jeff and I wake every morning and...
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